Last week I met with a Clinical Geneticist to discuss and carry out genetic testing to see if I have the breast cancer (BRCA1/2) genes. I was lucky enough to qualify for funding due to my age so I didn't have to pay the $2500+ for the testing, which was a relief. The results take three to four months to arrive. If I do have either gene I will have a higher risk of recurrent Breast Cancer and Ovarian/Fallopian Tube Cancer, so it is recomended that i have further risk-reducing surgeries. I'm obviously hoping the results will come back negative and maybe then I will feel confident saying I HAD cancer.
Wednesday, 28 August 2013
Almost done?
I'm coming to the end of my treatment and I don't quite know how to feel. I've had my mastectomy, finished chemo, and only have two radiation sessions to go, but I'll continue my Herceptin infusion every three weeks till April, followed by my reconstructive surgery at some point. Once radiation is over, there's no final scan, no last check to make sure I really am cancer free. There are apparently physical checks that I will have to continue, as well as check ups with my surgeon and oncologists every few months, but nothing to really mark the end of all this. I had cancer. It was removed when I had my mastectomy. The rest of my treatment has been a preventative measure. But even though I have explained this to family and friends plenty of times over these last eight months, I don't feel like I can definitively say I HAD cancer yet. My surgery felt like the beginning of my cancer journey, not the end.
Thursday, 8 August 2013
Chemo is over, Radiation has begun, but more importantly my husband is awesome!
Things are good.
It's been almost a month since my last post, which makes me a very slack blogger, but I've been busy enjoying being finished with chemo.
My last chemo was a breeze. My husband came with me and it seemed to go so quickly that we forgot to take a photo while we were there. The photo below was taken outside the lifts as we were leaving. I had a few side effects from the chemo, mainly loss of taste and that horrible taste in my mouth which lasted for over a week and nearly drove me crazy, but knowing I'd never have to experience it again did help.
Plenty of other things have happened too. I've had another heart scan which showed my medication is working and my heart improving, so I have also resumed my herceptin. I have started radiation and had seven treatments so far. My hair has started to grow back, admittedly very slowly, on my head at least. I was finally able to go to the dentist, which I have never been so excited about, as I lost two fillings just before starting and it felt as though chemo was eroding the rest of my teeth away. Two visits and six fillings later I was feeling much better and was most importantly ready for my surprise weekend away.
I've mentioned before that my husband was planning a weekend away to celebrate my birthday and also the end of chemo, and I knew we were going to the Blue Mountains, but I didn't know where we were staying. We headed off last Friday, after saying goodbye to our little birdie and my parents who were staying at our place to look after her, and after driving for two hours we pulled into Katoomba. As we drove down the main street the view of the mountains was so beautiful that I took a photo through the windscreen of the car. I imagined that we would be staying in a little cottage or Bed and Breakfast, and when we saw the sign for Lilianfels Resort, which is the most beautiful boutique five star hotel in the Blue Mountains, my first thought was 'Wow. That's Lilianfels.' Shortly followed by 'We couldn't be staying there, could we? There's no way he would have booked Lilianfels, is there?' and then we kept driving. But as we turned the corner I saw the main entrance to Lilianfels and my husband put the blinker on. As we pulled in to the drive way I couldn't stop my eyes from welling up, as they are now just thinking about it. I said to him 'you didn't and he just smiled and said 'well I wouldn't be driving in here if I hadn't.' We drove up the long drive way, past the beautiful gardens, the outdoor pool, and the hatted restaurant, to the hotel. I stayed in the car while my husband went inside to check us in as he didn't want me to hear any of the other surprises he had planned for me. When he returned to the car he took me up to our room, an executive suite with incredible views of the mountains (a billion times better than the view from the street coming into town), and then told me we were having dinner at Darleys, the hatted restaurant we had driven past on the way in.
Once we had settled in, we went for a walk down to the most famous spot in the Blue Mountains, The Three Sisters. It was late afternoon so the whole area had a beautiful golden glow. As the sun began to set and the temperature drop, we headed back to the hotel lounge for drinks before getting ready for dinner. Darleys was incredible! The restaurant is in the original Lilianfels house that was built in the late 1800's and was just beautiful. The food, the wine, the staff, everything was just perfect. It was the best meal either of us have ever had!
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| The Three Sisters |
The next day started with an early (delicious) buffet breakfast in the hotel's Orangerie, followed by a rest in our hotel room, and then another surprise: a delux High Tea in the hotel lounge. Looking around at the incredible hotel and discussing how good our dinner was the night before, my husband said to me 'I mightn't say much or make a big deal of what you are going through, but I hope all this shows you how much I appreciate and admire you.'
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| High Tea and my two glasses of champagne |
After high tea we walked into the town centre to have a look around and ended up 'bumping into' some friends, another surprise organised by my husband. That night we them met for dinner and I was surprised yet again when we walked into the restaurant to see another couple of our closest friends sitting at the table. Dinner was once again delicious, and the desert was especially wonderful.
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| Dinner at Pins |
The next day was Sunday, our last day there, and it began with another lovely breakfast in the Orangerie where my husband told me that he had enjoyed our high tea the day before so much, that he had decided to book another one for that morning. We returned to our room to get our things packed and there was a feint knock at the door followed by a child's voice. My husband asked me what it was and I told him it must have been the room next door but he told me to check just incase. So I opened the door, only to see my mum and little birdie standing there, very excited. My husbands final surprise was to have my parents and our little birdie join us for high tea on our last morning away. Little birdie was extremely excited to see us both, as we were to see her, and I think she enjoyed her special children's high tea even more than we all enjoyed ours!
So, as you can hopefully tell, it was an absolutely wonderful and unforgettable weekend, something both my husband and I were in great need of, and I am a very lucky woman to have such a thoughtful, generous, loving husband.
Thursday, 11 July 2013
Last chemo today!
First of all, at my last chemo I had to stop one of my drugs, herceptin, as it was causing me problems with my heart. A few days before chemo I had a routine heart scan. When I saw my oncologist on the day of chemo, I was told that my heart function had gone from 61% down to 49%. That was after only 4 doses. 4 of a planned 18. Needless to say i was quite unsettled by this, but my doctor assured me that it was a common side effect and that it had been picked up early, before it could do any real damage. He told me I would need to cease taking the herceptin for the next two cycles and see a cardiologist who would prescribe me medication to support my heart for the rest of my treatment. So last week I went off to see a cardiologist. He prescribed me blood pressure and what he alarmingly referred to as 'heart failure' medication, as well as organising another heart scan for the end of the month to see how things are progressing.
That very night, 7 days after my husband's seizure and emergency hospital stay, I had to spend a night in the emergency department myself. The day before, little birdie wasn't quite herself and had a bit of a fever. The next day she was covered in a red rash so I took her to the doctor and was told she had a virus and that it would sort itself out. That afternoon I was exhausted and freezing, but didn't think much if it until i was bathing her and started to feel hot and nauseous. Once I put her to bed I took my temperature and it was 38.7. I checked my chemo paperwork and confirmed that if I had a fever of 38.2 or higher I would have to go straight to the hospital. I stripped off my beanie and jumper and gave myself some time to cool down, but half an hour later my temperature was still the same so I drove myself to the hospital. When I got there my temperature was 38.9 and I was immediately admitted, put on a drip, given blood tests, a urine test, and even a chest X-ray (while still in bed. It was very cool) and then given fluids and antibiotics through the drip. Thankfully my blood results looked good and even though my immune system was low, because i was 13 days out from chemo, it wasn't at a dangerous level. Overnight I woke up shaking and had a temperature of 39 degrees but by the morning i was feeling fine. After a visit from my sister, and a few discussions with the nurses, the oncologist came and saw me. The first thing I told him was that it was my daughters 2nd birthday the following day and I had to be home when she woke up, so luckily enough, he prescribed me some antibiotics and had me discharged just before midday. Finally, things were starting to look up for us.
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| Finally home with little birdie! |
Little birdies birthday was wonderful! My husband had the day off work. She opened all her presents in bed with us in the morning and then we had birthday pancakes. They were my first attempt at homemade pancakes and were pretty horrible, but she didn't seem to care. We spent the day playing with her new toys, had a picnic in the sun in our backyard, and in the afternoon my sister and her kids came over for cake.
On Sunday we had a few people over for her birthday party and she had an absolute ball. My husband and I also had a great day and were super proud to have managed to put on a party for her despite us both being in hospital in the ten days leading up to it.
This week has been full of doctors appointments but this time things are going well. Two days ago I had my radiation planning appointment and was given my start date, along with 4 new teeny, tiny, tattoos. I start in three weeks time, on July 31st and should have my last treatment on September 3rd. We will definitely be having a nice big party to celebrate after that!
Yesterday we went and saw my husbands neurologist and we got some more good news. When we left hospital after his seizure he was told he was not allowed to drive, possibly for six months, but the neurologist told us that seeing as he has only ever had seizures while asleep, and because he is back on his medication, he is now allowed to drive. This was a massive relief for both of us, especially seeing as he works an hour away from home, and because he is taking me on a surprise weekend away for my birthday and didn't particularly want me driving myself.
So, it's been a pretty crazy last few weeks, hang on, make that months, but I'm excited that one massive part of my treatment will be finishing today. I'm hoping that knowing that I haven't got any more chemo treatments to go through will make any side effects I suffer this time bearable and I'm also looking forward to celebrating my birthday before I have to worry about starting radiation.
And now for some entertaining moments courtesy of little birdie:
1- For the week or so leading up to her birthday, little birdie had been very excited. Anytime she saw me making decorations, or even just a picture of a cake, she would start smiling and pointing, would sing happy birthday, and tell us about how she was going to have a birthday cake with candles on it and she was going to blow out.
2- When asking her who she wanted to come to her party, she would start by listing her cousins, aunties and uncles, friends... And her cousins pet cat smokey! She did it every single time.
3- When dropping her at my sister in laws the other day, she saw me put my bag and and started crying. She started saying 'not yet, not yet' and I told her I had to go but she was staying at her aunties. As soon as this sunk in she stopped crying and said ok, and went back outside and continued playing with her cousins. She didn't care at all that I was going, she just didn't want to go with home!
4- Little birdie has also been pretty entertaining first thing in the morning. As soon as she wakes up she is on! She chats away in her cot. Sings songs, most of which she makes up herself. Looks out the window and yells at the birds. Calls out saying 'Mummy. Daddy. Where are you? Get up! Get up! Wake uuup!' And then she starts chatting away to her toys. As soon as I go in she tells me all about what she has been doing, asks me to carry her toys and take her to the 'younge' (lounge) and we have breakfast.
xx
Sunday, 30 June 2013
Give us a break!
So I think it's fair to say that I am a pretty positive person. Not in an annoying, in your face way, but I never really think 'why me?', I just get on with things. Well this week, I've seriously been tested.
***disclaimer: this post contains occasional coarse language and feeling sorry for myself. Only read on if you want to join my pity party. Don't worry though, it's not a long one. ***
I've mentioned on here previously that my husband and I have been through some pretty difficult times. Well this month celebrated five years since his brain tumour and subsequent surgery, and it was kind of sad looking back at those five years and to see everything we have gone through, and are still going through. My husbands brain tumour, surgery, and subsequent seizures. The loss of his mum to short battle with cancer. The loss of his dad six months later. And now, my cancer. All in just five years. On the obvious up side, we have also been lucky enough to have fallen pregnant and had our incredible little birdie, who amazes and entertains us everyday, so it obviously hasn't been all bad.
But this week we were reminded all too clearly of the most terrifying experience of the last five years. At 12:55am Friday morning, I was awoken by a quick tap on the shoulder from my husband, only to open my eyes and see him going into a full blown, fucking seizure. I managed to stay calm, call paramedics, call our wonderful neighbour who came straight over, keep my husband on his side and safe on the bed, all while watching him thrash around, foaming at the mouth, with his eyes wide, bloodshot, and terrified. Luckily, the seisure only went for about 5 minutes, and by the time the ambulance arrives, 19 minutes after I first called, he had just started to come to. He was given oxygen and couldnt really talk, but was eventually able to walk, aided, to the ambulance. From the ambulance I called (and woke) my sister who headed straight over at 2am to relieve my neighbour, and not only stayed the night, but took little birdie home with her the next morning. Sitting in the ambulance after I had done everything I needed to do was the first chance I had to actually think about what was happening, and the first thing I thought was 'You've got to be fucking kidding me! I'm riding in an ambulance, with no hair, one boob, and a very visible scar thanks to the fact im pretty much in my pyjamas, and I'm not even the one who needs treatment.' They say that you're only given as much as you can handle, and yes, I can handle this, but give us a fucking break. In the words of a great friend who just happened to text me while I was still at the hospital, 'doesn't the universe know what we've been through?!'
I've mentioned on here previously that my husband and I have been through some pretty difficult times. Well this month celebrated five years since his brain tumour and subsequent surgery, and it was kind of sad looking back at those five years and to see everything we have gone through, and are still going through. My husbands brain tumour, surgery, and subsequent seizures. The loss of his mum to short battle with cancer. The loss of his dad six months later. And now, my cancer. All in just five years. On the obvious up side, we have also been lucky enough to have fallen pregnant and had our incredible little birdie, who amazes and entertains us everyday, so it obviously hasn't been all bad.
But this week we were reminded all too clearly of the most terrifying experience of the last five years. At 12:55am Friday morning, I was awoken by a quick tap on the shoulder from my husband, only to open my eyes and see him going into a full blown, fucking seizure. I managed to stay calm, call paramedics, call our wonderful neighbour who came straight over, keep my husband on his side and safe on the bed, all while watching him thrash around, foaming at the mouth, with his eyes wide, bloodshot, and terrified. Luckily, the seisure only went for about 5 minutes, and by the time the ambulance arrives, 19 minutes after I first called, he had just started to come to. He was given oxygen and couldnt really talk, but was eventually able to walk, aided, to the ambulance. From the ambulance I called (and woke) my sister who headed straight over at 2am to relieve my neighbour, and not only stayed the night, but took little birdie home with her the next morning. Sitting in the ambulance after I had done everything I needed to do was the first chance I had to actually think about what was happening, and the first thing I thought was 'You've got to be fucking kidding me! I'm riding in an ambulance, with no hair, one boob, and a very visible scar thanks to the fact im pretty much in my pyjamas, and I'm not even the one who needs treatment.' They say that you're only given as much as you can handle, and yes, I can handle this, but give us a fucking break. In the words of a great friend who just happened to text me while I was still at the hospital, 'doesn't the universe know what we've been through?!'
At the hospital my husband was given his anti-seizure medication, which he had been taking for the last five years but stopped six months ago (obviously a bad idea). He was given various blood tests and a ct scan, all of which came back clear, and was monitored for four hours to make sure he didn't have another seizure, and then we were sent home. We both spent the weekend resting and apart from being quite swollen, tired, and sore from the sheer physicality of the seizure, he is fine. And so am I.
I am back to my positive self now. Yes it's a horrible thing that we've had to experience again, but we were also pretty lucky. Lucky that the seizure happened at home, in bed, with me, and not while my husband was at work, or driving, or any number of other alternatives. Lucky that it was unwitnessed by little birdie. Lucky that it was minor compared to the one five years ago. One that went for almost 30 minutes and after which he spent 2 days in intensive care, 5 days in hospital total. Lucky that in the 6 months that he was off the medication he lost over 20 kilo's and became fitter and healthier than I have ever known him. And lucky that even though we don't have his incredible parents around to help us this time, we still have wonderful family and friends who dropped everything to be there for us and little birdie all weekend. So I guess, all in all, that does make us very lucky.
Friday, 14 June 2013
I'm a terrible blogger, but I'm just a bit over cancer.
After my last chemo (number four) I felt pretty terrible for over a week. I was given the top of the line anti-nausea drugs, since I had a few days of nausea after cycle three, but I ended up feeling horrible. No nausea, but I felt like my brain was fried. I couldn't think properly, was fatigued, I was dizzy on and off for about five days, and felt quite shakey. The last week I have pretty much felt back to normal, but I've just been so over the whole cancer thing that I couldn't even bring myself to look at this blog. And to make me feel especially attractive, my eyelashes and eyebrows seem to slowly be thinning out, my fingernails are getting ridges and feeling sore like they might start lifting, and I've been feeling like a cross between uncle fester and an old gypsy woman.
Even while I was feeling like this though, it wasn't all bad. I had the wonderful Alicia who came to chemo with me (who i grew up next door to, who is my friend Morgan's mum and is also one of my mums closest friends) come over and spend three days at home with me and little birdie as my parents are away overseas (they're back on Monday, yay!). Every day she brought delicious cakes for morning tea, which was lovely even when i couldn't taste them, she did my washing, tidied my house, cooked for me, and even took little birdie for walks to go shopping or pick me flowers so I could have a rest. I'm not sure how I would have managed if I had been home on my own in that time!
My husband has also been especially amazing over the last few weeks. He came home one night (when i was feeling particularly crappy) with a bunch of roses, chocolates, and my favourite magazine, as well as a card saying how much he appreciates everything i do for him and little birdie even though I'm also dealing with chemo and cancer, and on top of that he told me he booked a weekend away for my birthday (which is 11 days after i finish chemo), but is surprising me with where we are going. He also had four days off over the long weekend and it was lovely. We got to relax, go to the markets, see both of our families, catch up with friends, do much needed work around the house, take little birdie to the park, plus he cooked some beautiful meals for me.
So now I have six days till my second last chemo and I plan to enjoy every one of them, even though I have a heart scan one day, a follow up with my surgeon the next, and my husband is going away for two days for work. I will catch up with friends, enjoy some wine now that my taste buds are back to normal, and take little birdie on an adventure (not at the same time of course)
Speaking of little birdie, here are some of the adorable things she has done over the past few weeks:
1- While eating jelly the other day, she said 'Mummy. Have some jelly. It's fun! It's fun! It's fun!' When she realised I found it funny, she just kept looking at me and saying 'Its fun! It's fun!' And laughing.
2- Playing in her bedroom the other morning, I walk in and find her like this. She is apparently painting the roof.
3- At the markets last weekend she told me she wanted her face painted. I wasn't sure if she would change her mind once she had a stranger putting wet paint on her face but she was wonderful. She sat very still the whole time and was very happy with the finished product. Unfortunately she was not so happy when we had to wash it off that night.
4- Little birdie has been spending a lot of time on the big toilet now that she is pretty much toilet trained. She loves waving to elmo, who's picture is on her special toilet seat, but what she loves even more is reading a book while on the toilet. We read 'Thats not my kitten' which has been a favourite since she was a baby, and she now knows the whole thing off by heart. She tells me 'it's ears are too soooft', 'It's tongue is too fuzyyyyyy', 'Its nose is too smooooth' 'it's bell is too shiii-neey' and although the storey says its paws are too rough, she tells me 'it's paws are too spongy!' and then giggles.
5- She has even managed to occasionally be adorable while throwing tantrums. When trying to get her ready for bed one night she refused to get dressed and instead was playing with her new toy coffee machine. I had asked her nicely a few times to come over and get dressed and she simply said 'No!', so my husband told her to come get dressed, to which she yelled 'No! I'm still making a coffee!' As much as we tried not to, my husband and I burst out laughing.
Monday, 20 May 2013
Halfway through chemo, yay!
I was planning on writing a new post last week, but to tell you the truth, I was feeling pretty terrible. They say you shouldn't drunk text and I figure you shouldn't sick blog, so I waited and am now feeling much better. I may even have a glass of wine tonight.
Chemo was a week and a half ago. My wonderful friend Morgan, who I've been friends with since we were both 6, came with me, AND she brought cupcakes! We even got to have a picnic in the sun after my blood test and before my oncologist appointment and chemo, and I love picnics, so it was a great day. Chemo itself was a breeze. I started much later than usual but I still finished at the same time because they can give me my drugs faster now, which I was very happy about. I also didn't have a problem with the giant frozen gloves, or get tired this time. In fact I felt so good that night, that I was able to help bath little birdie and her four cousins when I got to my sisters place, where my parents had been looking after all five grandchildren all day.
Unfortunately, that was pretty much the end of the smooth sailing. I started feeling a bit nauseous that night, and by the next morning I just felt crappy. I took my anti-nausea medication which helped, but my taste buds were gone and ironically, I had a horrible taste in my mouth that I just couldn't get rid of. All I could really eat were crackers, and strangely Thai stir fry with rice. Despite all this, I still had a nice weekend.
My husband and my dad finished landscaping our front yard on Saturday while we had some work done on the inside of our house, so little birdie and I just hung out together. Sunday was Mother's Day and I was spoilt. My husband and little birdie both gave me beautiful cards and two pairs of adorable Bambi pyjamas (which I had subtly hinted that I wanted. By emailing him a photo of them. I never expected to get both pairs though.) We were having lunch with my family and decided to take the scenic route so little birdie could have a nap in the car on the way. We left mid morning and drove through the national park, across the water on the ferry, and then through semi-rural suburbs. We saw flower and fruit stands set up on the sides of roads, plenty of farms and nurseries, as well as the odd horse grazing near the road. It was like a lovely, sunny, drive through the country side. Eventually we made it back to the traffic of suburbia and it wasn't long till we were at the restaurant. Lunch was lovely, if not a bit hectic with four kids, 5, 3, and two almost two, running around. It was such a luxury to be in a restaurant surrounded by family, even if it was a very busy and noisy one. Little birdie was very well behaved and even sat and watched Pepper Pig while we waited for our food. The best part of the day though was when we got home. My husband took little birdie for a walk to the park at the end of the street, while I got back into my Bambi pyjamas and had an hour long nap. It was heaven! The rest of the afternoon/evening we all just hung out in our bedroom together and I was able to forget about my upset stomach and horrible tasting mouth.
The whole next week I felt off. I had to take my anti-nausea medication Monday, Tuesday, and Wednesday, which I've only ever taken once or twice past the first two days after chemo. I found this quite depressing as I hadn't been nauseous at all since starting chemo, and was hoping I would be able to get through all my chemo without the nausea. The medication helped but I still had a horrible taste in my mouth, which meant I was constantly hungry, but could rarely find anything other than crackers that I could eat. By saturday I was almost feeling back to normal. We had a nice, relaxing weekend at home, and even had a couple of picnics in the sun in our back yard with little birdie. It was just what I needed.
Today I met my Radiology Oncologist. My husband and little birdie came too and played with her new favourite toy, a play microwave her cousin gave her, while I talked to the Doctor. She was absolutely lovely and explained everything thoroughly. I will have radiation five days a week for 5-6 weeks to my whole left chest wall, part of my neck, and I think my underarm where my lymph nodes were removed. The whole procedure should only take an hour or so, but i haven't worked out what I'm going to do with little birdie for that time. Im exhausted just thinking about it. Anyway, back to the point. My Doctor talked me through the side effects that I was aware of, like fatigue and the possible sunburn like burn to the treated skin, but also discussed long term side effects that I had no idea about, including a higher risk of lymphedema, and possible damage to my heart and lungs down the track. She made a point of telling me that they are hesitant to use radiation treatment on younger patients unless absolutely necessary, as these problems can effect them negatively later in life, whereas a patient in their 50's or 60's realistically won't have as long for these problems to develop, but in my case the benefits and need obviously outweighs the risk. After all, i think it's more important to make sure I make it to my 60's before we start worrying about what side effects might pop up then.
I've decided to start ending my posts with a list of a few adorable things little birdie has said and done. This week there have been quite a few, in between throwing the not so odd tantrum. Those terrible twos are definitely on their way, what timing!
1- After waking up from her nap the other day, I asked her, as i often do, if she had had any dreams. She told me she had, and when I asked her what she dreamt about, she said 'Daddy'. I almost cried, it was so lovely!
2- Speaking of dreams, just last night she was playing with my hair brush (I certainly don't need it right now). She was running her hand over the bristles and said 'It feels nice'. I responded by saying 'Really? What does it feel like?' And she said 'Dreams. It feels like dreams mummy'.
3- While playing in her bedroom, little birdie has continued to 'read' her books, but has started saying 'once upon a time' as she flips through the pages, and even makes the same sound effects that I do when reading them to her.
(Fell asleep on my sleeping husband, halfway through 'painting' on the iPad)
Wednesday, 8 May 2013
A lovely day.
Today was a wonderful day. Nothing excessive. Nothing fancy. Just one of those perfectly lovely days, spent with my little birdie. And I figure, this blog is full of descriptions about cancer treatment, side effects and so on, so I wanted to write an almost cancer free post.
Seeing as tomorrow is chemo number three, and I'll possibly be spending the next few days feeling a bit average, I wanted to do something to make the most of today, this whole week really. Yesterday we spent the day at my sisters where little birdie had a ball playing with her cousins. That afternoon we picked my husband up from the train station when he finished work, but we got there a bit early. Instead of just waiting in the car like we usually would, I decided to take her down to the station platform. She loved everything about it! Riding down in the glass lift, walking along the long platform, and especially watching the train come in and looking for her daddy through the carriage doors. On a bit of a side note- My dad takes my sisters two eldest children, 5 and 3, on an 'adventure' every week. They catch the ferry into the city and then the train home to my sisters, stoping along the way to explore anything from tourist attractions, to toy shops, parks we used to play in as kids, museums etc, and they have an absolute ball. So today, when my husband suggested little birdie and I take the bus over to a friends place when I was carless, I jumped at the chance to take her on her first bus ride.
After a relaxed morning, little birdie had her nap and I got everything in order. I packed our bags, lunch, and her backpack, and planned our journey. We were only travelling to the next suburb, but that made it no less of an adventure. When she woke up we walked in the sun to the bus stop, just up the street. She pointed out birds, told me all about the different coloured flowers we saw, saw puppies, very messily ate her jam sandwiches, and then waited for the bus. When she saw it come around the bend she stared at it with both her eyes and mouth wide open. We were the only passengers on the bus and the driver, Colin, was absolutely lovely. He asked all about little birdie, some questions she even answered herself, and he didn't seem to be in a rush to drive off either. When we finally took off she seemed a lot more nervous than I expected. At first she sat on the seat right beside me but after going around a sharp bend, she sat, or rather laid, in my lap. We arrived at our first destination, the train station, Colin made the people about to get on the bus wait and move aside so little birdie and I could get off safely. From here we began walking to our friends house. Again, little birdie loved describing everything she was seeing. This time, as we were walking along the main road, she also had plenty of trucks and 'big cars' to point out.
After about ten minutes walking we arrived at my friends place. She has a son who is a few months old than little birdie as well as a newborn baby, so little birdie was thoroughly entertained all afternoon. And we had a lovely afternoon too, full of tea and cake. My husband picked us up on his way home from work and not only was little birdie very excited to see her daddy, but my friends son (who hardly knows my husband) also seemed quite excited. He gave my husband a tour of the backyard, and when they came back inside, he was in my husbands arms hugging him. Then, as I got in our car, I saw a big pink bag on my seat, inside which was a box full of decadent cupcakes. What else could I want?
When we arrived home the three of us relaxed, and played, for an hour, and then i started to get dinner ready. We all ate together, then I took little birdie for her bath, but before she got in she insisted on using her potty (and did successfully) for the second time today. After the bath she came and sat with my husband and I, brushed her teeth, got dressed, and then spent 10 minutes 'reading' us her Aussie alphabet book. This involved pointing at the pictures and telling us what they were: 'Barbecue' 'Echidna' 'Frog' ' Horsie' 'Ice cream' 'Lizard' 'Quoll' 'Wombat' and 'Yabby'. And after that she had a bottle and went straight to bed.
So, like I said earlier, today was a lovely day. A day where I didn't think about having cancer, instead I though about being a mum and enjoyed the little things that seem so wonderful to my little birdie.
Seeing as tomorrow is chemo number three, and I'll possibly be spending the next few days feeling a bit average, I wanted to do something to make the most of today, this whole week really. Yesterday we spent the day at my sisters where little birdie had a ball playing with her cousins. That afternoon we picked my husband up from the train station when he finished work, but we got there a bit early. Instead of just waiting in the car like we usually would, I decided to take her down to the station platform. She loved everything about it! Riding down in the glass lift, walking along the long platform, and especially watching the train come in and looking for her daddy through the carriage doors. On a bit of a side note- My dad takes my sisters two eldest children, 5 and 3, on an 'adventure' every week. They catch the ferry into the city and then the train home to my sisters, stoping along the way to explore anything from tourist attractions, to toy shops, parks we used to play in as kids, museums etc, and they have an absolute ball. So today, when my husband suggested little birdie and I take the bus over to a friends place when I was carless, I jumped at the chance to take her on her first bus ride.
After a relaxed morning, little birdie had her nap and I got everything in order. I packed our bags, lunch, and her backpack, and planned our journey. We were only travelling to the next suburb, but that made it no less of an adventure. When she woke up we walked in the sun to the bus stop, just up the street. She pointed out birds, told me all about the different coloured flowers we saw, saw puppies, very messily ate her jam sandwiches, and then waited for the bus. When she saw it come around the bend she stared at it with both her eyes and mouth wide open. We were the only passengers on the bus and the driver, Colin, was absolutely lovely. He asked all about little birdie, some questions she even answered herself, and he didn't seem to be in a rush to drive off either. When we finally took off she seemed a lot more nervous than I expected. At first she sat on the seat right beside me but after going around a sharp bend, she sat, or rather laid, in my lap. We arrived at our first destination, the train station, Colin made the people about to get on the bus wait and move aside so little birdie and I could get off safely. From here we began walking to our friends house. Again, little birdie loved describing everything she was seeing. This time, as we were walking along the main road, she also had plenty of trucks and 'big cars' to point out.
After about ten minutes walking we arrived at my friends place. She has a son who is a few months old than little birdie as well as a newborn baby, so little birdie was thoroughly entertained all afternoon. And we had a lovely afternoon too, full of tea and cake. My husband picked us up on his way home from work and not only was little birdie very excited to see her daddy, but my friends son (who hardly knows my husband) also seemed quite excited. He gave my husband a tour of the backyard, and when they came back inside, he was in my husbands arms hugging him. Then, as I got in our car, I saw a big pink bag on my seat, inside which was a box full of decadent cupcakes. What else could I want?
When we arrived home the three of us relaxed, and played, for an hour, and then i started to get dinner ready. We all ate together, then I took little birdie for her bath, but before she got in she insisted on using her potty (and did successfully) for the second time today. After the bath she came and sat with my husband and I, brushed her teeth, got dressed, and then spent 10 minutes 'reading' us her Aussie alphabet book. This involved pointing at the pictures and telling us what they were: 'Barbecue' 'Echidna' 'Frog' ' Horsie' 'Ice cream' 'Lizard' 'Quoll' 'Wombat' and 'Yabby'. And after that she had a bottle and went straight to bed.
So, like I said earlier, today was a lovely day. A day where I didn't think about having cancer, instead I though about being a mum and enjoyed the little things that seem so wonderful to my little birdie.
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